Knights For Rare 2024: Fundraiser for Nephrokids

Knights For Rare 2024: Fundraiser for Nephrokids

A walking dinner fundraiser event to benefit Nephrokids!

By Avanzanite Bioscience BV

Date and time

Thursday, April 18 · 7 - 10pm CEST

Location

Rhineloft Cologne

Frankenwerft 35 Haus des Kölner Handwerks 50667 Köln Germany

Refund Policy

Contact the organizer to request a refund.

About this event

Join the Avanzanite Bioscience team, biotech executives, physicians, investors, public officials, and rare disease advocates at the 2024 KNIGHTS for RARE fundraiser.


We started the tradition of KNIGHTS for RARE in 2023 to do something meaningful for the people that truly make a difference in patients’ lives every day. Each year, we select one unicorn, “hidden gem”, patient association in Europe, doing just that for people with rare diseases. Not as a job but as a mission and a legacy.


The 2024 RARE KNIGHT is NEPHROKIDS, a parent’s association from North Rhine-Westphalia, Germany, dedicated to children suffering from rare kidney diseases.


Nephrokids supports children, young people, and their families with kidney disease. What’s amazing and really inspiring is that the association was founded by parents whose own children had rare chronic kidney diseases. And while their kids have grown into young adults, these founding parents continue their mission to support the next generation of children and their families.


Nephrokids is led by Michaela Peer, a parent herself, who founded Nephrokids in 1990 and continues to chair its Board and manage day-to-day operations.


Go to www.nephrokids.de to learn more about the inspiring things they do.


The 2024 Knights for Rare fundraiser and walking dinner will take place on 17 April 2024 from 1900–2130 at the beautiful Rheinloft Cologne.


All proceeds and donations from Knights for Rare will go directly to the Nephrokids.

Organized by

Avanzanite is on a mission to boost orphan drug access across Europe and beyond. Derived from the word ‘Tanzanite’ – one of the rarest and most underappreciated gemstones on earth – Avanzanite was formed to capitalize on two primary objectives, one economic, and one humanitarian.

The economic goal is to offer end-to-end commercialization and distribution partnerships with research-based biopharmaceutical originators to unlock the full value of their orphan medicines in European markets. This is the unique expertise and core competency of our team following decades of operating experience navigating this area.

Equally important, our humanitarian goals stem from our commitment to enabling access to novel medicines for patients who suffer from rare diseases regardless of where in Europe they live.

Sold Out