Living Lab Utrecht x Dotslash Health- tafel
Living Lab Utrecht x Dotslash Health- tafel
do., mei 11, 17:00
Europalaan 100 • Utrecht
Gratis
Venster Acties
Sharing your self-collected health data for the common good?
Door Mijn Data Onze Gezondheid, Amsterdam Economic Board, TNO, QS, HHDC
Waar en wanneer
Datum en tijd
vr. 25 jan. 2019 13:00 - 17:00 CET
Locatie
Cafe Restaurant Polder 201 Science Park 1098 XH Amsterdam Netherlands
Beschrijving
Upscaling QS and other self-collected data in Health for the Common Good
Quantified Self (QS) is a global community of users and makers of self-tracking tools who share an interest in “Self-Knowledge Through Numbers.” Founded in 2008 by Wired magazine editors Kevin Kelly and Gary Wolf, the Quantified Self community has been widely influential in setting an agenda for public health and open science using self-collected data.
Most Quantified Self projects are driven by individual questions, but since 2012 leaders in the Quantified Self community have been working closely with public health experts, policymakers, and research scientists to advance discovery through increasing access to data.
In this first edition of the CCS series we will explore the requirements of self-tracked health data for it to be both safe for an individual as well relevant for group analysis. How can we share our data in a way that protects our privacy and individual agency while supporting collaborations with clinical and public health research?. What are the appropriate models for social and ethical governance of highly detailed data shared by individuals?
Speakers
Gary Wolf, international pioneer of QS, will reflect on this topic from a global perspective. Martijn de Groot, co-founder and former director of QS Institute, will talk about the position of QS in The Netherlands. Both are authoring a white paper on Everyday Science (sponsored by the Robert Wood Johnson Foundation), to be released soon. Andre Boorsma, TNO-data scientist, distinghuishes different views on so-called “Digital Health Data Market places” as enablers of data sharing, with a special focus on the Holland Health Data Co-operative. Gaston Remmers, co-founder and director of Foudation My data our Health introduces the workshop.
The interactive debate aims to deliver clarity about the question:
What conditions should be met for you to share your self-collected health data for the common good?
Mijn Data Onze Gezondheid, Amsterdam Economic Board, TNO, QS, HHDC
Organisator van Upscaling Quantified Self in Health for the Common Good
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Georganiseerd door
Mijn Data Onze Gezondheid, Amsterdam Economic Board, TNO, QS, HHDCABOUT MD|OG
This workshop is the kick-off of the Co-operative Citizen Science Series., an initiative of Foundation Mijn Data Onze Gezondheid (MD|OG). The series is an outcome of the 2018 International BeyondRCT conference, and aims to enable a comprehensive multiyear programmatic approach to Co-operative Citizen Science. Gaston Remmers, co-founder and director of MD|OG, will introduce the workshop. Amsterdam Economic Board, TNO, Quantified Self International and the Holland Health Data Co-operative partner with MD|OG in this first edition of the series.